My dear friends, I received a comment on a recent blog post that I couldn’t ignore. I know we don’t “feed the trolls“. But the disgusting comment made in regards to my post about taking my special needs daughter to the store left me a bit floored that such hate could exist in our world. “Your special needs child should have been euthanized.” That’s what he said. He called my daughter an “it”. But here’s what he doesn’t realize about my special needs child.
My daughter, Shiloh, was born “normal”. There was nothing wrong with her. No red flags, no obvious deformities. She cried, ate and made dirty diapers just like every other neuro-typical child.
She was almost a year old before we really started noticing that something was wrong.
What we were later to realize was a horrible disease called Rett Syndrome was starting to rear its ugly head.
But even despite the next few years screaming, clinginess, lack of skill building, we have a “miracle” child. Our child has extremely ‘high’ functioning version of Rett Syndrome. Unlike many other girls that are diagnosed with this disease, she is able to walk, use her hands and is even learning to talk. So many other beautiful girls don’t have that opportunity.
People often describe Rett Syndrome as girls who are trapped in their own mind. They can’t speak or move on their own, but their minds still work.
My beautiful daughter, at five years old, currently has the ability to express her mind. And I’m thankful for that. We are praying for a cure for her and the many other girls who are affected by this terrible disease.
So, her screaming in the store is very far down on my list of worries.
I worry if we’re going to wake up one day and the next stage of this wretched disease is going to set in.
I worry if all the work that she’s put into learning to talk and walk and play will disappear in the horrible regression stage that Rett Syndrome promises.
I know he doesn’t care about her medical history. And I know that nothing I say can change his hatred.
The sad part is that he is not alone. Comments such as this are made to parents of special needs kids every day.
For the record, this is what he said:
For one, your “special needs” child should have been euthanized, and for two, if it can’t behave in public it has no business being in public.
Some are told never to bring their child to church because they are disruptive. (As if Jesus didn’t die for them too.)
Some are told how ugly their child is.
Some are asked why they didn’t abort their child.
Some are asked why they haven’t institutionalized their child.
Some are asked why they even bother to try educating their child.
Sometimes actions speak louder than words.
But I have never considered that my daughter’s life and every other special needs child’s life isn’t worth celebrating.
My daughter wakes up every morning with a smile on her face. Let’s be honest. My daughter wakes up at 2am, 3am, 4am and more with a smile on her face.
Her laughter and smiles touch every person she talks to.
She has never met a stranger and gives amazing hugs to everyone that takes the time to try to understand her.
She loves building blocks, LEGOs, reading, and snowmen.
Last month she learned how to alternate feet going up the stairs.
She treasures her baby doll. Her name is Baby Pie if you haven’t been formally introduced…
She is obsessed with going to school and loves her teachers and friends.
Shiloh loves to pray and worship.
She has touched countless lives in her 5 years on this earth.
She has helped me find a place of love that I never even knew existed.
So to the man who tried to leave that horrible comment on my blog (and I deleted), I hope that someday, somehow you will realize that all lives are sacred.
And to you, my awesome readers, I appreciate your kindness and support as we walk this journey with special needs.
Please share this post and let the world know that every life should be treasured. Let’s make our actions speak louder than those words.